August 18, 2022

Today things were a little better. His kidneys are just a touch better and his mouth is starting to clear a little bit. They are bringing in wound care to take care of some of these things, that makes me happy. He sat in the chair most of the day, that’s progress. His feet, ankles and knees are really swollen and he has a really hard time walking on them. They say it’s due to all the liquid they are pumping into him. Tonight he ate a yogurt and 4 sips of chicken broth. He said he only did it so I would quit nagging him 🤣🤣. He had chocolate milk and about 1/4 of a smoothie this morning – so I’m calling today a win 🏅

Oh how true this is ❤️

Okay….this is where I get random

So I get ready to leave the hospital, I make sure he has everything he is going to need on the table really close. I cover him up with multiple blankets, because he is cold all the time. I lay my head on his chest, put my arms around him and say “I miss you holding me, you always make me feel so safe, I am strong, but I’m not as strong without you”. He tries to hug me tight, but he’s got IV’s everywhere and he is on a ton of pain meds, so he is pretty weak. Then he says “I don’t like it when you leave, I’m scared”…..my tough guy is scared 🙁. Tears start rolling down my cheeks (which I don’t want him to see) I gather all my stuff, and walk to the door. I say bye honey, I will be here tomorrow. Then I go down two elevators, with tears just streaming down my face (people try not to look at me), I get to my car, and break down sobbing. I don’t want to leave. But I have a bunch of furry creatures that are also relying on me, so I make my hour drive home, listening to songs that make me cry more. Dave has always said that if he got sick he would be in trouble, because he thought I wouldn’t be there for him, man I proved him wrong. But I have always thought the same thing about him. I always tell him he will just put me in some home but I think I know now, we will take care of each other. Anyway, I always pull into my driveway and look at his truck, and I break down again. I finally walk to my door and I am greeted by 3 dogs who act like they haven’t seen me for weeks. I let them out, and Cash comes and literally hugs me and proceeds to wash away all my tears, and then sits in my lap (mind you he is 75 lbs). Then I walk in my house and am greeted by the whole crew of furry creatures 🤣. Some people think I’m insane, but you know what, I need them right now, as much as they need me. They calm my soul and make it seem like it will be okay, at least for tonight. Then I sit here and type random stuff in my notes. I research everything about how to cure Dave’s cancer, and how I can make him feel better – I usually fall asleep with my phone in my hand and my glasses still on 🤣. And I have kitties laying all over my chest. They are purring and touching my face and to me, that is heaven. Then I pass out and I wake up with cats and kitties everywhere (and I love it). So right now I am looking back on life and I’m thankful that I have Dave, that we have our 5 kids and their spouses….and grand babies, they make the world go round. During all of this there have been people come around that Dave hasn’t seen in 15 years, and he is so happy they came. He talks to his two sisters way more and Heather, who is a nurse, has shown up and it puts his mind to ease. Our kids have been wonderful. Dave and I always ask each other….how did we raise such wonderful children, I don’t know how we did that 🤣. My mom and dad are always on board to listen to me, and they go sit with Dave whenever I can’t be there first thing. My mom does Dave’s laundry. And the people at Downeast (that is where Dave works)….they are an incredible group. They come visit, they call, they have made some stuff happen for us….I don’t even know what to say, they do not make people like that anymore, and there is a whole company full of them, I am so humbled, and Dave just cries. Well, I am tired and I’m rambling….I’m going to bed so I can wake up tomorrow and find out it’s not a bad dream 😻

He just pretends he doesn’t like them 😻
Sometimes they like him better than me 🤦‍♀️
The gentle giant 😻

August 18, 2022

I am still at the hospital with Dave. He just does better when he feels my presence, he will wake up and automatically look for me. I will help him shower, make sure he has cold water, nag him to have chocolate milk and ensure clear 🤣. I think he is doing better today, he has stayed awake more and talked more. Tuesday and Wednesday he would just sleep. They gave him blood and IV nutrition, I think that has helped a ton. His kidneys are still not working, but they tell us to not worry, he just needs time to heal. The chemo is still floating around his body because the kidneys are not flushing it out. They tell us everything has to heal, and Dave is wore out. They are pushing this next chemo back until he is healed. If your kidneys don’t work it throws everything off, so they monitor him very close. They pump magnesium, potassium and anything else that is “off” into him. I will say this is where you want to be if you have cancer, they keep track of everything, they are so amazing. So I don’t think he will be home until next week. As long as the kidneys are shut down there is way to much to keep track of…..So I think I will go home. My mom is coming in the morning, we try to never leave him alone other than at night.

8/17/2022 – Today Sucked!!!!

Okay, I know not everyday is going to be wonderful, I know Chemo is hard on your body, but I think you should at least get some wins once in awhile. Today was rough. Dave has not eaten since Saturday morning. He has zero, I mean zero energy. He just wants to sleep (and pee). He has sores in his mouth and down his throat. I won’t get to graphic, but his butt is raw (I didn’t realize how raw until today). He is beaten down and just not Dave 😞. I bugged him enough today that he drank a chocolate milk and ensure clear, apple flavored. But that is not enough. So they are starting TPN, that is nutrition you get through your IV, it bypasses your intestinal tract. (Steak in a bag 🤣). He needs some nutrition. They are giving him blood, they said that should help with his energy. But they hadn’t started it by the time I left. I am there every day, I will do whatever it takes to help him through this. I have said it before…he is my person, there isn’t anything I won’t do. Today, after we figured out how raw Dave’s butt is, they gave him pain relief by mouth and IV. He hates taking pain relievers, but he needed them. He was really high 🤦‍♀️. He tells me “you should go home and get some of your stuff done”……..I said “well, I could, I just hate leaving you” – he hugged me and said “I know if you were half way home and I called you, you would turn around and come back”. I cried and we just hugged and hugged. They are postponing the chemo that starts next week, they said Dave needs to heal – so I don’t know when that’s rescheduled. His kidneys had not improved today, but they think they will get better. So we are at an impasse, Dave needs to heal so they can try and kill him off again 🤦‍♀️……I know, I’m negative Nancy, but what he is going through is horrible.

My motivational quote for today

August 16, 2022 Blog Update

It’s been a tough couple of days. Dave’s body is rejecting the last chemo treatment they did and his kidney’s started failing. It’s been a really long couple of days. He hates when I go home and wants me to just go to my dads to sleep, but sometimes I need to go home. He has been asleep all day yesterday and today. In his words “I sleep and pee”…. Which is really true. He hasn’t eaten since Saturday morning, so they are starting IV nutrition tomorrow. I really don’t know when he is coming home. He was suppose to be home now and then go back next week to start this next round of chemo. But he is not coming home yet and they still plan on doing the chemo next week…I have started a calendar for the next couple of weeks, so we can take shifts and I can work 1/2 days. I know he is going to beat this…but it may kill us getting there. But he is my person. My whole life. We have so much still left to accomplish, he needs to come home so we can accomplish it 😻

Dave from today, with his new hat…..he needs to get feeling better 😻😻😻😻😻😻
From a couple days ago….He is still my Dave ❤️

August 14, 2022

Dave had a rough night last 🙁. He called me at midnight and I went to the hospital. We had a rough night and slept about an hour. His kidneys started having a rough time and his potassium and magnesium crashed. They started pumping him with magnesium, potassium and electrolytes, he was scared. His throat was swelling and he couldn’t swallow. The weekend nurses are not great. I went and got him coffee and it helped. Dari and Hunter came up this afternoon so I have come home to get some stuff done and sleep, I may end up there again tonight. I know this regimen of Chemotherapy they are doing is intense, but damn, this is my big tough guy and this is not supposed to happen to him. All I can hope is this to will pass and we will look back on it and remember, once again, how we held each other up, I love him sooooo much this tears me apart. I would give up pretty much anything in the world for this to be a bad dream. It’s been nice having Taylor here to help me and just get to hang out with me…I have missed this kid. Dakota is always my lifesaver, he came over again yesterday and mowed and edged (you have to remember we own over 6 acres). He cut around the pond and got rid of one of the chicken coops that I have wanted gone. He also ran into a huge snake (it’s a dead snake now) but this is why we have to keep everything cut down….snakes, I hate snakes….I don’t care if they eat the mice, I hate snakes. He left part of it in the goat pen, I keep seeing the goats going over to check it out 🤦‍♀️🤦‍♀️, I will dispose of it when I feed them tonight.